'Une certaine magie' – les expériences d’interaction des adultes autistes avec d’autres personnes autistes et leur relation avec la qualité de vie : une revue systématique et une méta-synthèse thématique
Ajouté le 21/06/2024
Article de revue du type Revue de la littérature scientifique ( ; anglais)
*Deux co-auteur·rices sont sur le spectre de l'autisme. [En savoir plus sur cette mention]
Des recherches ont suggéré que les personnes autistes aiment passer du temps avec d’autres personnes autistes et trouvent plus facile de leur parler. Nous voulions savoir ce que les autistes pensent du temps qu'ils passent avec d'autres personnes autistes et si cela améliore leur vie. Nous avons trouvé 52 articles décrivant cela et avons examiné ce qu'ils ont trouvé. Nous avons constaté que de nombreuses personnes autistes avaient des expériences positives en passant du temps avec d'autres personnes autistes et que ces expériences avaient un impact positif sur leur vie de différentes manières. Les journaux ne nous disent pas si cela arrive également aux personnes autistes ayant des troubles d'apprentissage. Des recherches supplémentaires sont nécessaires pour comprendre pourquoi passer du temps avec d’autres personnes autistes aide certaines personnes autistes.
Research has suggested that autistic people enjoy spending time with other autistic people and find them easier to talk to. We wanted to find out what autistic people say about spending time with other autistic people and whether this makes their life better. We found 52 papers which described this and reviewed what they found. We found that many autistic people had positive experiences of spending time with other autistic people and these experiences had positive impact on their lives in a range of different ways. The papers did not tell us whether this also happens for autistic people with a learning disability. More research is needed to find out more about why spending time with other autistic people helps some autistic people.
Pour information:
(1) les références en bleu sont des ressources référencées sur notre site;
(2) les auteur·rices repris dans cette bibliographie dont le nom est en couleur ont publié d'autres ressources référencées sur le site. Cliquer sur le nom permet de voir la listes des ressources publiées et partagées sur le site;
(3) les auteur·rices dont le nom est suivi d'une astérisque ont publiquement divulgué être autistes. [En savoir plus sur cette mention]
-
D. Adams, K. Young (2020). "A Systematic Review of the Perceived Barriers and Facilitators to Accessing Psychological Treatment for Mental Health Problems in Individuals on the Autism Spectrum". Review Journal of Autism and Developmental Disorders 8. doi:10.1007/s40489-020-00226-7
-
A. Anderson, J. Stephenson, M. Carter (2017). "A systematic literature review of the experiences and supports of students with autism spectrum disorder in post-secondary education". Research in Autism Spectrum Disorders 39. doi:10.1016/J.RASD.2017.04.002
-
E. Billstedt, I. Gillberg, C. Gillberg (2011). "Aspects of quality of life in adults diagnosed with autism in childhood". Autism 15. doi:10.1177/1362361309346066
-
M. Black, R. Kuzminski, J. Wang, J. Ang, C. Lee, S. Hafidzuddin, S. McGarry (2022). "Experiences of Friendships for Individuals on the Autism Spectrum: A Scoping Review". Review Journal of Autism and Developmental Disorders doi:10.1007/s40489-022-00332-8
-
M. Botha*, E. Cage (2022). "'Autism research is in crisis': A mixed method study of researcher's constructions of autistic people and autism research". Frontiers in Psychology 13. doi:10.3389/fpsyg.2022.1050897
-
M. Botha*, B. Dibb, D. Frost (2021). "'It's being a part of a grand tradition, a grand counter-culture which involves communities': A qualitative investigation of autistic community connectedness". Autism 26. doi:10.1177/13623613221080248
-
M. Botha*, D. Frost (2018). "Extending the Minority Stress Model to Understand Mental Health Problems Experienced by the Autistic Population". Society and Mental Health 10. doi:10.1177/2156869318804297
-
K. Bottema‐Beutel, S. Kapp*, J. Lester, N. Sasson, B. Hand (2020). "Avoiding Ableist Language: Suggestions for Autism Researchers". Autism in Adulthood: Challenges and Management 3. doi:10.1089/aut.2020.0014
-
K. Bottema‐Beutel, H. Park, S. Yoon Kim (2017). "Commentary on Social Skills Training Curricula for Individuals with ASD: Social Interaction, Authenticity, and Stigma". Journal of Autism and Developmental Disorders 48. doi:10.1007/s10803-017-3400-1
-
E. Cage, M. Botha*, L. McDevitt, K. King, L. Biscoe, K. Tucker, A. Pearson* (2024). "Diagnosis as a new beginning not an end: A participatory photovoice study on navigating an autism diagnosis in adulthood.". Autism : the international journal of research and practice doi:10.1177/13623613231220418
-
Y. Chen, L. Senande, M. Thorsen, K. Patten (2021). "Peer preferences and characteristics of same-group and cross-group social interactions among autistic and non-autistic adolescents". Autism 25. doi:10.1177/13623613211005918
-
H. Chiang, I. Wineman (2014). "Factors associated with quality of life in individuals with autism spectrum disorders: A review of literature". Research in Autism Spectrum Disorders 8. doi:10.1016/J.RASD.2014.05.003
-
R. Cooper, K. Cooper, A. Russell, L. Smith (2020). "'I'm Proud to be a Little Bit Different': The Effects of Autistic Individuals' Perceptions of Autism and Autism Social Identity on Their Collective Self-esteem". Journal of Autism and Developmental Disorders 51. doi:10.1007/s10803-020-04575-4
-
K. Cooper, L. Smith, A. Russell (2017). "Social Identity, Self-Esteem, and Mental Health in Autism". European Journal of Social Psychology 47. doi:10.1002/EJSP.2297
-
C. Crompton, S. Hallett*, C. McAuliffe, A. Stanfield, S. Fletcher‐Watson (2022). "'A Group of Fellow Travellers Who Understand': Interviews With Autistic People About Post-diagnostic Peer Support in Adulthood". Frontiers in Psychology 13. doi:10.3389/fpsyg.2022.831628
-
C. Crompton, S. Hallett*, H. Axbey, C. McAuliffe, K. Cebula (2022). "'Someone like-minded in a big place': Autistic young adults' attitudes towards autistic peer support in mainstream education". Autism 27. doi:10.1177/13623613221081189
-
C. Crompton, M. Sharp, H. Axbey, S. Fletcher‐Watson, E. Flynn, D. Ropar (2020). "Neurotype-Matching, but Not Being Autistic, Influences Self and Observer Ratings of Interpersonal Rapport". Frontiers in Psychology 11. doi:10.3389/fpsyg.2020.586171
-
C. Crompton, S. Hallett*, D. Ropar, E. Flynn, S. Fletcher‐Watson (2019). "'I never realised everybody felt as happy as I do when I am around autistic people': A thematic analysis of autistic adults' relationships with autistic and neurotypical friends and family". Autism 24. doi:10.1177/1362361320908976
-
C. Crompton, D. Ropar, C. Evans-Williams, E. Flynn, S. Fletcher‐Watson (2019). "Autistic peer-to-peer information transfer is highly effective". Autism 24. doi:10.1177/1362361320919286
-
C. Cummins, E. Pellicano, L. Crane (2020). "Autistic adults' views of their communication skills and needs.". International journal of language & communication disorders doi:10.1111/1460-6984.12552
-
A. Daley, S. Phipps, N. Branscombe (2018). "The social complexities of disability: Discrimination, belonging and life satisfaction among Canadian youth". SSM - Population Health 5. doi:10.1016/j.ssmph.2018.05.003
-
R. Davis, C. Crompton (2021). "What Do New Findings About Social Interaction in Autistic Adults Mean for Neurodevelopmental Research?". Perspectives on Psychological Science 16. doi:10.1177/1745691620958010
-
A. Dugdale, A. Thompson, A. Leedham, N. Beail, M. Freeth (2021). "Intense connection and love: The experiences of autistic mothers". Autism 25. doi:10.1177/13623613211005987
-
M. Elmose (2019). "Understanding loneliness and social relationships in autism: The reflections of autistic adults". Nordic Psychology 72. doi:10.1080/19012276.2019.1625068
-
E. Erwin, M. Brotherson, J. Summers (2011). "Understanding Qualitative Metasynthesis". Journal of Early Intervention 33. doi:10.1177/1053815111425493
-
M. Ezerins, L. Simon, T. Vogus, A. Gabriel, C. Calderwood, C. Rosen (2023). "Autism and Employment: A Review of the 'New Frontier' of Diversity Research". Journal of Management 50. doi:10.1177/01492063231193362
-
D. Frost, I. Meyer, S. Schwartz (2016). "Social support networks among diverse sexual minority populations.". The American journal of orthopsychiatry doi:10.1037/ort0000117
-
M. Gernsbacher, M. Yergeau (2019). "Empirical Failures of the Claim That Autistic People Lack a Theory of Mind". Archives of scientific psychology 7. doi:10.1037/arc0000067
-
K. Gillespie-Lynch, D. Bublitz, A. Donachie, V. Wong, P. Brooks, J. D’Onofrio (2017). "'For a Long Time Our Voices have been Hushed': Using Student Perspectives to Develop Supports for Neurodiverse College Students". Frontiers in Psychology 8. doi:10.3389/fpsyg.2017.00544
-
H. Goddard, A. Cook (2021). "'I Spent Most of Freshers in my Room'—A Qualitative Study of the Social Experiences of University Students on the Autistic Spectrum". Journal of Autism and Developmental Disorders 52. doi:10.1007/s10803-021-05125-2
-
R. Grinker (2020). "Autism, 'Stigma,' Disability". Current Anthropology 61. doi:10.1086/705748
-
K. Hannes, K. Macaitis (2012). "A move to more systematic and transparent approaches in qualitative evidence synthesis: update on a review of published papers". Qualitative Research 12. doi:10.1177/1468794111432992
-
B. Heasman, A. Gillespie (2018). "Neurodivergent intersubjectivity: Distinctive features of how autistic people create shared understanding". Autism 23. doi:10.1177/1362361318785172
-
P. Howard, F. Sedgewick (2021). "'Anything but the phone!': Communication mode preferences in the autism community". Autism 25. doi:10.1177/13623613211014995
-
D. Jones, D. Mandell (2020). "To address racial disparities in autism research, we must think globally, act locally". Autism 24. doi:10.1177/1362361320948313
-
S. Kapp* (2019). "Autistic Community and the Neurodiversity Movement". doi:10.1007/978-981-13-8437-0
-
S. Kapp*, K. Gillespie-Lynch, L. Sherman, T. Hutman (2013). "Deficit, difference, or both? Autism and neurodiversity.". Developmental psychology doi:10.1037/a0028353
-
S. Yoon Kim (2019). "The experiences of adults with autism spectrum disorder: Self-determination and quality of life". Research in Autism Spectrum Disorders doi:10.1016/J.RASD.2018.12.002
-
A. Leedham, A. Thompson, R. Smith*, M. Freeth (2019). "'I was exhausted trying to figure it out': The experiences of females receiving an autism diagnosis in middle to late adulthood". Autism 24. doi:10.1177/1362361319853442
-
J. Mantzalas, A. Richdale, A. Adikari, J. Lowe, C. Dissanayake (2021). "What Is Autistic Burnout? A Thematic Analysis of Posts on Two Online Platforms.". Autism in adulthood : challenges and management doi:10.1089/aut.2021.0021
-
F. Markowitz (1998). "The effects of stigma on the psychological well-being and life satisfaction of persons with mental illness.". Journal of health and social behavior doi:10.2307/2676342
-
E. Marriott, J. Stacey, O. Hewitt, N. Verkuijl (2021). "Parenting an Autistic Child: Experiences of Parents with Significant Autistic Traits". Journal of Autism and Developmental Disorders 52. doi:10.1007/s10803-021-05182-7
-
D. Mason, H. McConachie, D. Garland, A. Petrou, J. Rodgers, J. Parr (2018). "Predictors of quality of life for autistic adults". Autism Research 11. doi:10.1002/aur.1965
-
L. Mattys, I. Noens, K. Evers, D. Baeyens (2018). "'Hold Me Tight So I Can Go It Alone': Developmental Themes for Young Adults With Autism Spectrum Disorder". Qualitative Health Research 28. doi:10.1177/1049732317730329
-
D. Milton*, E. Gurbuz, B. Lopez (2022). "The 'double empathy problem': Ten years on". Autism 26. doi:10.1177/13623613221129123
-
D. Milton*, T. Sims (2016). "How is a sense of well-being and belonging constructed in the accounts of autistic adults?". Disability & Society 31. doi:10.1080/09687599.2016.1186529
-
D. Milton* (2012). "On the ontological status of autism: the 'double empathy problem'". Disability & Society 27. doi:10.1080/09687599.2012.710008
-
K. Morrison, K. DeBrabander, D. Jones, D. Faso, R. Ackerman, N. Sasson (2019). "Outcomes of real-world social interaction for autistic adults paired with autistic compared to typically developing partners". Autism 24. doi:10.1177/1362361319892701
-
P. Moss, W. Mandy, P. Howlin (2017). "Child and Adult Factors Related to Quality of Life in Adults with Autism". Journal of Autism and Developmental Disorders 47. doi:10.1007/s10803-017-3105-5
-
J. Noyes, A. Booth, G. Moore, K. Flemming, Ö. Tunçalp, E. Shakibazadeh (2019). "Synthesising quantitative and qualitative evidence to inform guidelines on complex interventions: clarifying the purposes, designs and outlining some methods". BMJ Global Health 4. doi:10.1136/bmjgh-2018-000893
-
T. Oredipe, B. Kofner, A. Riccio, E. Cage, J. Vincent, S. Kapp*, P. Dwyer*, K. Gillespie-Lynch (2022). "Does learning you are autistic at a younger age lead to better adult outcomes? A participatory exploration of the perspectives of autistic university students". Autism 27. doi:10.1177/13623613221086700
-
M. Page, J. McKenzie, P. Bossuyt, I. Boutron, T. Hoffmann, C. Mulrow, L. Shamseer, J. Tetzlaff, E. Akl, S. Brennan, R. Chou, J. May Glanville, J. Grimshaw, A. Hrõbjartsson, M. Lalu, T. Li, E. Loder, E. Mayo-Wilson, S. McDonald, L. McGuinness, L. Stewart, J. Thomas, A. Tricco, V. Welch, P. Whiting, D. Moher (2020). "The PRISMA 2020 statement: an updated guideline for reporting systematic reviews". Systematic Reviews 10. doi:10.1186/s13643-021-01626-4
-
A. Pearson*, K. Rose, J. Rees (2022). "'I felt like I deserved it because I was autistic': Understanding the impact of interpersonal victimisation in the lives of autistic people". Autism 27. doi:10.1177/13623613221104546
-
B. Pfeiffer, A. Piller, T. Giazzoni-Fialko, A. Chainani (2017). "Meaningful outcomes for enhancing quality of life for individuals with autism spectrum disorder". Journal of Intellectual & Developmental Disability 42. doi:10.3109/13668250.2016.1197893
-
L. Plimley (2007). "A review of quality of life issues and people with autism spectrum disorders". British Journal of Learning Disabilities 35. doi:10.1111/J.1468-3156.2007.00448.X
-
V. Preedy, R. Watson (2010). "Diagnostic and Statistical Manual of Mental Disorders". doi:10.1007/978-0-387-78665-0_5485
-
O. Rifai, S. Fletcher‐Watson, L. Jiménez-Sánchez, C. Crompton (2021). "Investigating Markers of Rapport in Autistic and Nonautistic Interactions". Autism in Adulthood: Challenges and Management 4. doi:10.1089/aut.2021.0017
-
E. Rothman, L. Graham Holmes, R. Caplan*, M. Chiang, B. Haberer, N. Gallop, R. Kadel, M. Person, A. Sanchez, E. Quinn, P. Wharmby (2022). "Healthy Relationships on the Autism Spectrum (HEARTS): A feasibility test of an online class co-designed and co-taught with autistic people". Autism 26. doi:10.1177/13623613211069421
-
N. Salmon (2013). "'We just stick together': how disabled teens negotiate stigma to create lasting friendship.". Journal of intellectual disability research : JIDR doi:10.1111/j.1365-2788.2012.01541.x
-
R. Schalock, G. Bonham, M. Verdugo (2008). "The conceptualization and measurement of quality of life: implications for program planning and evaluation in the field of intellectual disabilities.". Evaluation and program planning doi:10.1016/j.evalprogplan.2008.02.001
-
R. Schalock (2000). "Three Decades of Quality of Life". Focus on Autism and Other Developmental Disabilities 15. doi:10.1177/108835760001500207
-
I. Schneid, A. Raz (2020). "The mask of autism: Social camouflaging and impression management as coping/normalization from the perspectives of autistic adults.". Social science & medicine 248. doi:10.1016/j.socscimed.2020.112826
-
K. Seers, R. Hogg (2022). "'Fake it 'till you make it': Authenticity and wellbeing in late diagnosed autistic women". Feminism & Psychology 33. doi:10.1177/09593535221101455
-
M. Seltzer, P. Shattuck, L. Abbeduto, J. Greenberg (2004). "Trajectory of development in adolescents and adults with autism.". Mental retardation and developmental disabilities research reviews doi:10.1002/MRDD.20038
-
C. Ting. Siew, T. Mazzucchelli, R. Rooney, S. Girdler (2017). "A specialist peer mentoring program for university students on the autism spectrum: A pilot study". PLoS ONE 12. doi:10.1371/journal.pone.0180854
-
L. Slater, L. Moneyham, D. Vance, J. Raper, M. Mugavero, G. Childs (2015). "The Multiple Stigma Experience and Quality of Life in Older Gay Men With HIV". Journal of the Association of Nurses in AIDS Care 26. doi:10.1016/j.jana.2014.06.007
-
M. Smith, E. Ginger, K. Wright, M. Wright, J. Taylor, L. Humm, D. Olsen, M. Bell, M. Fleming (2014). "Virtual Reality Job Interview Training in Adults with Autism Spectrum Disorder". Journal of Autism and Developmental Disorders 44. doi:10.1007/s10803-014-2113-y
-
K. Southby, O. Robinson (2017). "Information, Advocacy and Signposting as a Low-Level Support for Adults with High-Functioning Autism Spectrum Disorder: An Example from the UK". Journal of Autism and Developmental Disorders 48. doi:10.1007/s10803-017-3331-x
-
J. Strang, M. Knauss, A. van der Miesen, J. McGuire, L. Kenworthy, R. Caplan*, A. Freeman, E. Sadikova, Z. Zaks, N. Pervez, A. Balleur, D. Rowlands, E. Sibarium, L. Willing, M. McCool, R. Ehrbar, S. Wyss, H. Wimms, J. Tobing, J. Thomas, J. Austen, E. Pine, A. Griffin, A. Janssen, V. Gomez-Lobo, A. Brandt, C. Morgan, H. Meagher, D. Gohari, L. Kirby, L. Russell, M. Powers, L. Anthony (2020). "A Clinical Program for Transgender and Gender-Diverse Neurodiverse/Autistic Adolescents Developed through Community-Based Participatory Design". Journal of Clinical Child & Adolescent Psychology 50. doi:10.1080/15374416.2020.1731817
-
D. Strickland, C. Coles, L. Southern (2013). "JobTIPS: A Transition to Employment Program for Individuals with Autism Spectrum Disorders". Journal of Autism and Developmental Disorders 43. doi:10.1007/s10803-013-1800-4
-
C. Tan (2018). "'I'm a normal autistic person, not an abnormal neurotypical': Autism Spectrum Disorder diagnosis as biographical illumination.". Social science & medicine 197. doi:10.1016/j.socscimed.2017.12.008
-
J. Thomas, A. Harden (2008). "Methods for the thematic synthesis of qualitative research in systematic reviews". BMC Med Res Methodol, 8, 45. doi:10.1186/1471-2288-8-45
-
D. Trembath, C. Germano, G. Johanson, C. Dissanayake (2012). "The Experience of Anxiety in Young Adults With Autism Spectrum Disorders". Focus on Autism and Other Developmental Disabilities 27. doi:10.1177/1088357612454916
-
A. Turnock, K. Langley, C. Jones (2022). "Understanding Stigma in Autism: A Narrative Review and Theoretical Model.". Autism in adulthood : challenges and management doi:10.1089/aut.2021.0005
-
K. Umagami, A. Remington, B. Lloyd-Evans, J. Davies, L. Crane (2022). "Loneliness in autistic adults: A systematic review". Autism 26. doi:10.1177/13623613221077721
-
S. Utsey, M. Chae, C. Brown, D. Kelly (2002). "Effect of ethnic group membership on ethnic identity, race-related stress, and quality of life.". Cultural diversity & ethnic minority psychology doi:10.1037/1099-9809.8.4.367
-
L. Walsh, S. Lydon, O. Healy (2014). "Employment and Vocational Skills Among Individuals with Autism Spectrum Disorder: Predictors, Impact, and Interventions". Review Journal of Autism and Developmental Disorders 1. doi:10.1007/S40489-014-0024-7
-
S. Wattanawongwan, J. Ganz, E. Hong, C. Dunn, V. Yllades, L. Pierson, E. Baek, M. Foster (2022). "Interventions for Improving Social-Communication Skills for Adolescents and Adults with ASD: a Meta-analysis". Review Journal of Autism and Developmental Disorders 10. doi:10.1007/s40489-021-00300-8
-
R. Ying Yew, P. Samuel, M. Hooley, G. Mesibov, M. Stokes (2021). "A systematic review of romantic relationship initiation and maintenance factors in autism". Personal Relationships doi:10.1111/pere.12397
-
Y. Yoshikawa, T. Muramatsu, K. Sakai, H. Haraguchi, A. Kudo, H. Ishiguro, M. Mimura, H. Kumazaki (2023). "A new group-based online job interview training program using computer graphics robots for individuals with autism spectrum disorders". Frontiers in Psychiatry 14. doi:10.3389/fpsyt.2023.1198433
Envie de Synthésiter/Commenter/Traduire cette référence?